Short chapter that I was going to triple but never had time. I'm so sorry. I'll have a big update eventually, but I don't know when. I haven't given up, so I wanted to post a little something to tell you all I'm still here.
[Sunday, September 12, 2021
September 12. That was the first full day that my little girl had cancer. That we knew about anyway. It was determined to be in her body for at least a year before.
The day before she had an MRI. Scary for any one to go through, never mind my 5 year old kid. I had to leave her alone in the room while she was refusing to get an IV in her arm.
"You stick that in my and I'll stick that in you and see how you like it!" she had yelled. The nurses had enough time struggling with her they told me to go away and they'd strap her down to try to get her sedated enough for the scan.
They never ended up sedating her completely.
At that point we knew it was cancer. A sweet nurse had told us what they thought it was a while before. "Neuroblastoma". The only thing I could think to do was ask for the spelling. The only thing we didn't know was how far it had spread.
I sent my computer off to search for the cancer and the results weren't good. There was no cure. It was rare that someone would survive this.
After the MRI we were told that it had spread very far, metastasized, and she had hardly any good cells left in her bone marrow because it was just full of cancer. They gave us the option to treat and if we did, the protocol would last about 10 months.
I had no idea what I was getting myself into on 9/11/21. The day that Christi "got" cancer. Jake and I argued that the treatment might not even be worth it. She was in such pain and it was so bad that we though that it might just make matters worse and the quality of life would be horrible for her in intense chemotherapy. But we figured if we didn't. If we hadn't, she'd be dead and buried within weeks.
Also on the 11th they told up that her main tumor was all around her heart, aorta, and esophagus. They were almost 99 percent positive that it was Neuroblastoma. But they had to get a piece of it out to be sure.
That was happening on the 12th.
The surgery was at noon.
