Trina
The burning of my face flushed as I curled up on my blanket activity had returned to normal instruments all blended as kids laughed and danced.
Cat and Jade lay on their blanket half asleep curled up in each others arms. Tori was talking to the two boys who had helped her up.
Study study study uh I was so sick of studying! It was summer I was suppose to be done with this chiz.
Yet I had to if I didn't I knew that witch would squeal on me and I knew from all the articles and interviews I had read over the years, Aisling would not be happy she valued her reputation she put her heart and soul into this camp.
Taking out the pearpad they had giving us I loaded up the app they called Nillformation kind of clever Nill was short for No Illusions and formation was for information.
If anything happened to one of these kids it would be bad press for the group and I know how celebrities worked.
What was my username and password? Crap..wait I got it. Smiling as I typed it in I knew Tori would be pissed.
Username- Littlesisterssuck
Password- SmellyToriVega
The app loaded and my room number appeared I typed in my next password which was numbers.
1995
The next screen came up and three pictures appeared I clicked on Cat's and her profile came up she was a cute kid.
The picture looked like it was three years old she was grinning her checks rosy and full her eyes still that same sparkle her long hair was left down and piled down to her lower back she was sitting on a wall over looking the beach her hair blowing out. Her head resting on her left knee while her right was tucked under her butt she had a bikini on.
Catrina Valentine Born June 26th 1998
New York City
My eyes watered as I learned why Cat was here and why she had passed out.
Dilated Cardiomyopathy
What the heck was that? I clicked on it and it brought me to an online medical dictionary for kids, my own heart squeezed reading it.
Dilated Cardiomyopathy is a disease of the heart muscle, usually starting in your heart's main pumping chamber (left ventricle). The ventricle stretches and thins (dilates) and can't pump blood as well as a healthy heart can. The term "Cardiomyopathy" is a general term that refers to the abnormality of the heart muscle itself.
It must be so hard not to be able to run and play to dance and jump whenever you wanted. Cat couldn't do any of these things cause it would over work her heart and she would pass out.
Cat is on a drug cocktail to help improve the quality of her life which must be maintained on a strict daily schedule.
Beta blockers a beta blocker slows your heart rate, reduces blood pressure and prevents some of the harmful effects of stress hormones, substances produced by your body that can worsen heart failure and trigger abnormal heart rhythms.
Beta blockers may reduce signs and symptoms of heart failure and improve heart function. Side effects include dizziness and low blood pressure.
Diuretics. Often called water pills, diuretics remove excess fluid and salt from your body. The drugs also decrease fluid in your lungs, so you can breathe more easily.
Cat must follow a Cardiac Diet which consists of No Fat Low Sodium and Low Cholesterol.
I vowed I would show her an awesome summer.
Jade West July 26th 1998
New York City
Mellublastoma
Why did they both have such odd diseases? Sighing I looked it up again.
My stomach rose when I saw what Mellublastoma was.
The word jumped out and froze at me.
R
What Jade had Cancer? I felt shaky she was so young my eyes took in her picture she looked like a little kid with these deep intense eyes her lips tightly pressed together not one part of her face was smiling.
Her eyes were filled with such anger and pain it squeezed my heart.
Diagnosed at age eight with standard risk Medulloblastoma. Mellublastoma is a cancerous tumor—also called cerebellar primitive neuroectodermal tumor (PNET)—that starts in the region of the brain at the base of the skull, called the posterior fossa.
These tumors tend to spread to other parts of the brain and to the spinal cord
What's standard risk?
Standard-risk tumor. The tumor is in the very back part of the brain and has not spread to other areas of the brain and spinal cord. Additionally, it is almost completely removed during surgery, meaning that less than 1.5 cubic centimeters (cm) of the tumor remains after surgery. However, the surgeon will usually prefer to remove all of the tumor if it can be completely removed without increasing the risk of severe side effects.
Jade has been in and out of the hospital since she was eight over 300 times having surgeries. Treatments, infections and many other challenges.
She went into remission at age ten only to relapse shortly after she turned Eleven.
This time she was categorized as High risk.
I dreaded reading what high risk was but taking a deep breath I did.
This type of tumor has either spread to other parts of the brain or the spine, or it has not spread but more than 1.5 cubic cm of tumor remains after surgery. Some tumors that first appear to be standard-risk tumors have high-risk molecular features and are treated as high-risk tumors
Jade's tumors have Metastatic meaning they have spread to other parts of her body including her spine and spinal cord.
She underwent a stem cell transplant at age 11 along with radiation and chemo for six months before she went into remission.
Three months later she relapsed with a high risk tumors found in her spine brain and spinal fluid.
Jade has undergone a surgical procedure called a craniotomy. Jade is currently undergoing Chemo three times a week bi-weekly.
Shaking I buried my head into my lap what had I gotten into?