Disclaimer: I do not own any of the characters and places mentioned. All the places are fictional and any resemblance is a mere coincidence.
Dr Abhinav gave them a look and then said: Actually, Daya ko aik… genetic disease hai… (Abhijeet and Disha's faces looked like that all the blood had been soaked away with a bloating paper) Wilson's disease...
He gave a look to his patient's family members and paused. To give them some time to digest the news he drank a glass of water after giving a look to Rahul. Rahul stood from his place and sat beside Abhijeet. He took Abhijeet's hand in his own hands and signalled him towards Disha whose eyes were dropping precious pearls silently. Abhijeet took a deep breath and put a hand on her shoulder. She gave him a teary look; Abhijeet through eyes signalled her to stay strong to which she responded with a silent nod.
After finding them a bit calm the doctor continued: yeh disease genes mai defect ki waja sy hoti hai jo k child ko dono parents sy milta hai… (Disha closed her eyes tightly; she was feeling guilty to give this much pain to her boy. Abhijeet sensed her pain; he tightly held her hand in his hands to give her strength.) dono parents iss defective gene k carrier hoty hain… or agar dono parents yeh abnormal gene bach'chy ko transfer karain tabhi ussy yeh disease hoti hai… (he tried to explain as much as possible) iss disease mai copper birth sy hi accumulate hona shuru ho jata hai liver mai jb liver ki limit cross ho jaati hai to copper different organs mai ikatha hona shuru ho jaata hai… liver k baad sbsy pehly brain mai jaata hai or phir brain k baad baki organs ko affect krta hai… or theek tarhan sy excrete nahi hota… kabhi kabhi bachpan mai hi symptoms show ho jaaty hain kabhi teenage mai… sometimes insaan ki puri life guzar jaati hai or burhapy mai iss beemari ka pata chalta hai… sometimes patient mai neurological symptoms nahi bulky liver related symptoms hoty hain and sometimes dono types k symptoms hi ikhaty hoty hain…(he gazed at the broken family members) Daya ko neurological symptoms huye thy… iss disease k symptoms bht si beemariyon k jessy hoty hain or yeh mushkil sy diagnose hony wali beemari hai… Daya k diagnosis mai iss liye dair lag gai or koi medicine asar bhi nahi kr rhi thi…
Abhijeet spoke with a tightened throat: Doctor aap itny yakeen sy kesy keh skty hain… (glancing both doctors)pehly bhi to kai baar aap log ghalat sabit huye hain?
Rahul sighed: Abhijeet humny jo Daya ka test kiya tha uska result positive aya tha… (explaining to them) humny Daya ka eye test kiya tha "slit lamp test"… uski eyes mai copper rings bny huye hain ussi sy hum apny diagnosis pr pohanchy hain…
Disha, who was silent till now spoke in a hoarse-trembling tone: phir ab… ab kya?
Dr Abhinav took the reins in his own hands: sometimes this disease is curable with lifetime medications… it depends on the damage… agar brain damage zyada hota hai to kabhi kabhi ussy reverse krna na-mumkin hota hai or patient ko apni puri zindagi esy hi guzarni hoti hai… aik dafa diagnose ho jaye to life-threatening nahi rehti yeh bemaari otherwise it can be fatal… (after seeing their dull and pain-stricken faces he tried to give them a ray of hope) hummy umeed hai k Daya will recover from it… aap log dua kijiye…
Dr Abhinav asked: aap ki family history mai koi esa case hai? means aapky maiky mai ya sasuraal mai aapky kisi relative ko wilson's ho ya kisi unknown disease ki wajah sy death ho gai ho?
Disha sniffed and shook her head in no: nahi koi esa nahi hai jissy mai jaanti hun…
Dr Abhinav looked at Rahul who was also sitting in a painful situation as he can't show his pain in front of them but he always considered Daya his own little brother: dekhy is beemari k defective gene bach'chy mai transfer hony k 25% chances hoty hain… (took a deep breath) hum kl sy hi Daya ki medicines start karain gy… kuch or tests bhi hain jo hummy krny hongy… usky ilawa hummy liver biopsy bhi krni hogi…
Abhijeet asked him: lekin Daya ko to koi liver problem nahi hai to biopsy?
Rahul answered his query: Abhijeet basically, liver ka kaam hota hai copper ko body nikalna lekin Daya ka liver apna kaam nahi kr raha bulky wo puri body mai copper phela raha hai… hummy check krna hoga k kitna liver damage ho chukka hai…
Disha asked while trying to choke her sob: dard hoga na mery bach'chy ko bht…
Rahul stood up from his place and sat on his knees in front of Disha, he held her hands: Auntie, yeh Daya k liye bohat zaroori hai… mai yeh nahi kahun ga k ussy koi dard nahi hoga lekin itna zaroor kahun ga k aap fikar na karain hum Daya ko kuch nahi hony dain gy… or aapkay Daya ko bilkul pehly jesa theek kr dain gy… (asked him in hope) bharosa hai na aap ko apny is bety pr?
Disha nodded in tears and spread her hand on his head: pura bharosa hai mjhe apny bety pr…
Dr Abhinav initiated: teen din baad Daya ki biopsy hogi… or hum kl sy hi Daya ka treatment start karain gy… chelation therapy… iss therapy k liye do medicines hain lekin India mai un mai sy sirf aik hi available hoti hai… hum ussi sy start karain gy… lekin is medicines k side effects zyada hain… or iss sy symptoms start mai bigarty hain… agar Daya k liye yeh medicine set ho jaati hai to bht acha hai… warna hummy medicine import karwani pary gi…
Abhijeet asked him: Hum Daya ko ghar kb ly jaa skty hain…
Rahul answered: kl subah ly jana… proper medicine start ho jaye phir ly jana…
Abhijeet nodded. Dr Abhinav suggested: Mr Abhijeet hum Daya ki genetic testing karain gy… I suggest k aap bhi apna test krwa lain… (Abhijeet looked at him in confusion while Disha held Abhijeet's hand tightly; her grip showed how much she was afraid) jesa maine bataya hai 25% chance hota hai iski inheritance ka… 4 years sy ly kr 50 years tk symptoms occur krty hain… aap as a precaution apna test bhi krwa lain…
Abhijeet glared: mjhe koi test nahi karana hai… lekin Daya k ilaj mai koi kami nahi aani chahiye…
Disha interrupted: nahi doctor aap please Jeet ka bhi test lijiye ga… (glared at Abhijeet) mjhe kisi kisam ka regret nahi chahiye baad mai…
Abhijeet sighed: hum Daya sy mil skty hain…?
Rahul nodded. They left the room after thanking the doctor.
Abhijeet said his mother while hiding his eyes: Maa aap Daya k pass jayein mai aata hun zara… (without waiting for anything he rushed from there)
Disha sighed and left towards Daya's room.
She silently entered inside and sat beside Daya's bed on the stool. She was now sobbing with voice.
She caressed his hair: Sorry meri jaan… Mumma ki waja sy mera bach'cha itni takleef mai hai… please maaf kr dena apni Maa ko… please… I'm sorry... so sorry… (she pecked on his forehead) Mumma sy naraz na hona… unhy chor kr mt jana, please…
She was silently talking to him when Rahul entered inside. He sighed looking at the broken mother; he had always seen her as a strong character as she took care of her sons single-handedly but right now she was crying after putting her strong character aside. He tried to lighten the mood.
Rahul in a little bit jolly tone: Arey yeh sher abhi tk so raha hai?
Disha wiped her face and smiled while continuously stroking his hair: hmmm… thak gaya hai aaj kafi…
Rahul did his routine check-up: sb theek hai… aaj raat to soye ga ab subah hi uthy ga… (he looked here and there) Auntie, yeh Jeet kahan hai?
Disha in disappointment: ro raha hoga kahi chup kr… mere liye khud ko strong dikhana chah raha hai… lekin mjhe pata hai kitni takleef mai hai… (she requested) beta tum please dekh lo ussy… kahan gaya hai…
Rahul assured her: aap fikar na karain mai dekhta hun…
She nodded in yes.
Meanwhile, Abhijeet went to the roof of the hospital. He bolted the door behind him. He just wanted to be alone right now. He can't show his tears to anyone. He had to stay strong for his mother and brother. But he can't make his heart understand. Only his heart knew what he was going through. His pain was reflecting in his red eyes and tear-stained face. He sat leaning on the fence. The smiling face of his brother was coming in front of his eyes again and again making his heart-ache. He was asking the same question to god again and again… why them? Why did their happy family have to go through all of this… how can bhagwaan be so cruel to them? How can he destroy their happy family like this? His mind was going wild due to the situation prevailing. His head had started killing him. His mind was full. He was lost in his thoughts when suddleny someone put a hand on his shoulders making him jump out his skin.
Rahul: kya ho gaya? Kyun dar gaye esy?
Abhijeet nodded in no: tum ander kesy aye? Maine to kundi lagai thi darwazy ko…
Rahul waived off his query: wo sb choro tum… yeh batao k yahan kya kr rhy thy?
Abhijeet stood up to move: mai neechy jaata hun Maa akeli hongi…
Rahul grabbed his hand: yaar mai tere liye yahan aya hun… mai janta hun k tu yahan kya kr rha tha… Jeet tera yun chup chup k rony sy koi faida nahi hoga yaar… tu apna dard mere sath share kr skta hai yaar… mai hun humesha tery sath… teri hr problem mai tere sath khara hun… aik dafa apna dard shae to kr k dekh…
Abhijeet looked at him with eyes full of precious diamonds threatening to fall down. Rahul hugged him tightly which allowed him to break the dam of his eyes.
Abhijeet sobbed: yaar mjhe samjh nahi aa raha hai mai kya karun? Kesy apny bhai ko is sb takleef sy bachaun… yaar wo kitni takleef mai hai… batata nahi hai lekin maine uski aankhon mai takleef dekhi hai… (in an anxious manner) yaar agar uski kahi hui baatain theek ho gayi? Agar wo mjhe baba ki tarhan sy chor kr chala gaya to? Yaar mai kya karun meri kuch samajh nahi aa raha hai…
Rahul rubbed his back to comfort him. His eyes were also shedding the silent tears: esa kuch nahi hoga… mai hun na… mai kuch nahi hony dunga Daya ko… I promise… or tub hi to hai na… is waqt Auntie or Daya dono ko tumhary sath ki zaroorat hai… or usky liye tumhy strong hona pary ga… iss tarhan krny sy tum hi beemar ho jao gy… ab bhi dekho kitna sar dard ho raha hai…
Abhijeet separated and rubbed his tears: yaar mai bht koshish kr raha hun lekin bs mai kya krun… iss liye Maa k samny nahi ro raha hun… wo wese hi apny aap ko blame kr rhi hain iss sb k liye… (asking him) yaar unki to koi ghalti nahi hai na iss sb main? Wo kyun apny aap ko blame kr rhi hain?
Rahul comforted him: haan is sb mai kisi ki koi ghalti nahi hai… na Auntie ki or na kisi or ki… (taking Abhijeet with himself) or tu chal mere sath…
He took him downstairs. Abhijeet got fresh and Rahul gave him medicine to relax his mind and headache. After freshening up Abhijeet wen to his mother and put a hand on her shoulder.
Disha looked at him with teary eyes. He put her head on his chest: Maa aap ab sy bilkul nahi royein gi… mai hun na… hummy strong rehna hai na? Daya k liye strong rehna hai… wo wesy bhi hummy esy dekh kr pareshaan ho jaye ga na…
Disha nodded. Abhijeet also sat on the bedside and grabbed Daya's hand in his own hands. They were waiting for a new dawn to rise.
Everyone feels pain
But surely, after suffering satisfaction will arrive
Even with sports; studying or other ordeals with life,
It's like that for everyone
If we can beat the pain, on the other side
a rainbow of happiness awaits us.
That will definitely become a treasure
Let's believe in that.
- Aya
A/N:
Guys, I don't know how you perceived this revelation but I just want to say one thing; this story is based on personal experience there is someone in my distant family who is suffering from this disease and the sad thing is that his brain damage is irreversible. He can't be normal again... Every day his family members look at him and suffer. He can't walk, talk and do daily routine tasks properly. He needs assistance in everything. His diagnosis was late and resulted in permanent brain damage. I wrote this story to increase awareness about it. Everything written so far is true even the scenes are real too they depict his life. You can google about it. I tried my best to write every fact properly. The time that is spent to find the diagnosis is what kills and do permanent brain damage.
Sorry guys got late... Hopefully, you will consider this time as Sunday...
Thank you to all those who read or reviewed.
Next chapter on Sunday after 40 reviews...
See you soon.
Take care.